liliana's world

My experience of HepC treatment

Name:
Location: Bolton, United Kingdom

argentinian born, into shamanic practice and self development. I am a teacher and craft person, but not working at present

Monday, June 26, 2006

INJECTION 40

INJECTION 40

DOSE REDUCED AT 39 WEEKS

I went to the hospital last week and it appears I am borderline risk, as my symptoms have got worse.  I have intermittent loss of feeling on both my hands and feet and at times my hands lock so I have to snap them open. I have lost another 8 pounds in three weeks though I push myself to eat. I have also become quite mad, as if that was possible LOL and my energy span before burn out is of about half hour.  I could also now be an understudy for Coronation Street’s Blanche, have opted for carrying a roll of masking tape instead.

The drop in dose has not made any difference as yet and, by last Thursday, the side effects were pretty scary.  I was hot to the touch, yet cold, and my heart was beating ten to the dozen.  Specialist and nurse agree all my symptoms are caused by tx, but it feels as if my body is perishing alongside the virus.  Thought I got lucky last week; went on an adventure to the paper shop, where the shopkeeper offered to walk me home; reality check suggests pity rather than me looking irresistible.
Joking apart, I found that the only way to keep the side effects down is to spend the majority of the time in bed; this may also be safer for others and save my relationships.  My dream life has become bizarre even for me, sometimes scary, others hilarious, so at least there is balance.  I have cut down on codeine based pain killers and halved the citalopram (thought these may be causing the racing mind) but I have had to accept that ‘riba madness’ is alive and well in Bolton.

Took injection 41 a couple of hours ago and ready to retreat to bed before the banshee comes out to play.

But what really cheeses me off is that I will be left with unsightly (and painful) varicose veins from my calf to the top of my right leg.  No more flashing tanned legs in the summer for me………  Ah………. Vanity…….

2 Comments:

Blogger misspoppy said...

To be frank Lili I think Blanche has got the edge, even after her hip replacement she still seems kind of spritely by comparison. I am impressed by the newsagents chivalry though, he wasn't called Norris by any chance was he?
You symptoms sound dire, what do they mean by borderline risk? Risk of what? Don't answer that, I know your energy is precious, save it for your last few jabs.
Thinking of you and hoping the next few weeks pass quickly for you.
Hugs
Miss Poppy x

11:30 pm  
Blogger Miss Jane said...

Goodness I identify with all this. I am Hep C cronic since 1994. In 2000 i was in tx with truly awful side effects, although the virus was not wiped out it went to sleep. 9 years later its on the move again. I have accepted tx again, HATE the side effects, but hey maybe this time I wont get them.....Wish me luck.

12:51 pm  

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