INJECTION 31

INJECTION 31

I wrote my last blog a couple of hours before taking my 31st. A few hours later the ‘speedy buzz’ turned to a very unpleasant despairing experience.  I was actually afraid of my feelings, but the funny thing is that I actually ‘believed’ what I was feeling was real and life was quite horrid.  
Next day I discussed this with my nurse and saw the pattern of the last three weeks. When the sides used to hit me three days after injection, lately there has been quite a severe response after three or four hours. My mood remained low for a couple of days but mainly because the experience was weird and unpleasant.

Plenty of TLC brought me round this week, thanks to my long suffering daughter and her babies. Ha!  Role reversion, I get to throw the tantrums and I don’t get shouted at.  Only joking; my friends and family are probably quite used to me being a little mad anyway.

Thursday I had a CT scan and that was also an odd experience since I had never had one before and the nurse informed me ( as she hooked me up to a kind of drip) that I was going to have a hot flush and feel as if I was wetting myself but was not going to do.  Nothing unpleasant happened; now just have to wait for the results.

Today my mood has leveled again and I have been actually enjoying my food the last couple of days, in fact have been unusually hungry so that’s been nice.  Comfort food……. Lovely!

Each week I get round another turn of the rollercoster of Tx, and maybe it is making me a bit giddy at times but while viruses are dieing its worth it.  One day life will be sweet again and I SHALL be able to dance a full song without panting.

INJECTION 30

INJECTION 30

This week did not go too bad, side effects hit rather hard a couple of hrs after injection and it went mainly for my chest; my peak flow is very low; hope I don’t have to run for my life haha!

One thing I am beginning to notice and rather cheeses me off is the extremity of my moods; I am high as a kite one minute and low as can be the next.

I just keep on reminding myself that I have survived so far and am doing quite well, One of these days I’ll get to believe it.  Sorry, not one of my better days.

On a better note, just worked out that I have FOUR calendar months to injection 48.  do not know where the time has gone.

28th AND 29th INJECT

28th AND 29th INJECTIONS

On the first week I recovered slowly but still felt very down and tired, with pain and cramps on my legs. I went away with friends at the weekend and although I took it easy, I was unable to enjoy any dancing.  It may sound silly, but dancing for me is one of my escape routes and however I’m feeling my body takes over (not necessarily jumping up and down).  For the very first time ever, half a song and had to sit down so out of breath.  Oh well, it should come back after tx.
Think the higher dose of antiDs is starting to work.

On the Monday (inj 29 due) I set off to the hospital. Big day for me, 24wk PCR results due and an ultrasound as well.
The virus RNA is undetectable by PCR; HCV viral load >15 iu/ml; log value >1.18.
This fantastic result was somewhat overshadowed by the ultrasound which showed obvious signs of cirrhosis, a 1cm eclogenic lesion, a benign haemargioma, and other regenerative nodules.  Great, I said, my liver is regenerating, but no, it tried to but couldn’t stick the new cells onto the bumpy surface and these nodules are funny shaped cell groups, good to nobody.
Therefore I have to have a CT scan to have a better look. But this should be okay as the ultrasound also showed that the portal vein flow is normal, and the kidney, gallbladder, pancreas, spleen and kidney are all normal; and no scites.
Injection 29 went okay, no obvious sides, in fact I went out on Tuesday and had a good day.  Was also out on Wednesday and had another good day.  My mood is up, and I guess it’s the extra Citalopram as I have been buzzing a bit last two days (long forgotten cupboards tidied! And several hrs of music downloads lol).
My skin is still stuck to me, looks like the desert floor but no rashes or sore; my normally thick and kinky hair is falling out heavily but evenly and is easier to keep smooth I have decided not to cut it.  I may as well hang on to what I have got. Lol

Anyway, today is Saturday and had to look up in the diary to see how many inj I’d had?  After Monday I have EIGHTEEN to go!!!  Cannot believe I have come this far, AND that I still have friends and a family, they are so so good at keeping their faces expressionless when I come out with my rantings.  If I ever ever go again on one of my ‘nobody loves me’ trips, I shall give myself a good kick up the bum!
Oops, it’s becoming clear that I am on a speedy high, so better close.